Alfred Lane, MD - Standford UniversityRead Full Bio
"We are currently working on several aspects of treatment for the EB patients: bone marrow and cord bloods transplant; using donor cells to improve wounds; multiplying cells from an unaffected area of the body for local treatment of injuries; and taking cells from the patient, using a gene-editing technology to fix them, multiplying them, and using them for a self-transplant of healthy cells."
-Jakub Tolar M.D., Ph.D.Read Full Bio
Dr. John Wagner - University of MinnesotaRead Full Bio
Dr. Zurab Siprashvili - Basic Life Science Senior Researcher. - Stanford University
Dr. Peter Marinkovich (Associate Professor of Dermatology Director, Autoimmune Blistering Disease Clinic) – Stanford UniversityRead Full Bio
At Heal EB we support research being developed for a cure for EB, or comfort measures while a cure is being developed. We are placing our support behind Stanford University, University of Southern California, and University of Minnesota. Thank you for your support!
This document and link provides information regarding Stanford's progress toward treatment and cure for Epidermolysis Bullosa:
• Clinical Trials Update Document
• Epidermolysis Bullosa Studies & Clinical Trials
Dr. Woodley and Dr. Chen are currently researching and developing a protein replacement therapy for Recessive Dystrophic Epidermolysis Bullosa.Research Update Download Link
University of Minnesota's Dr. Tolar and Dr. Wagner are researching the treatment of EB using stem cells. They are investigating the effectiveness and duration of different types of stem cells as well as different methods of delivery of the stem cells to the patient. For more information, click the link below.
• University of Minnesota's Epidermolysis Bullosa research page