Alfred Lane, MD - Standford University

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"We are currently working on several aspects of treatment for the EB patients: bone marrow and cord bloods transplant; using donor cells to improve wounds; multiplying cells from an unaffected area of the body for local treatment of injuries; and taking cells from the patient, using a gene-editing technology to fix them, multiplying them, and using them for a self-transplant of healthy cells."

-Jakub Tolar M.D., Ph.D.


Dr. John Wagner - University of Minnesota


Dr. Zurab Siprashvili - Basic Life Science Senior Researcher. - Stanford University


Dr. Peter Marinkovich (Associate Professor of Dermatology Director, Autoimmune Blistering Disease Clinic) – Stanford University

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At Heal EB we support research being developed for a cure for EB, or comfort measures while a cure is being developed. We are placing our support behind Stanford University, University of Southern California, and University of Minnesota. Thank you for your support!

Alfred Lane, MD, discusses EB research and treatment
Stanford University Epidermolysis Bullosa Clinical Trials Update

This document and link provides information regarding Stanford's progress toward treatment and cure for Epidermolysis Bullosa:

• Epidermolysis Bullosa Studies & Clinical Trials

University of Southern California Epidermolysis Bullosa Research

Dr. Woodley and Dr. Chen are currently researching and developing a protein replacement therapy for Recessive Dystrophic Epidermolysis Bullosa.

University of Minnesota's Epidermolysis Bullosa Research

University of Minnesota's Dr. Tolar and Dr. Wagner are researching the treatment of EB using stem cells. They are investigating the effectiveness and duration of different types of stem cells as well as different methods of delivery of the stem cells to the patient. For more information, click the link below.

• University of Minnesota's Epidermolysis Bullosa research page